Hope everyone has a fantastic and restful spring break!
Hope everyone has a fantastic and restful spring break!
Because of some confusion, we have 2 posts for chapters 30 and 31. 🙂
Wow! Melody awoke to a rainy, stormy day. Dad’s arm was in a sling after he punched the wall following Melody’s mistreatment, and he was taking off. Mom had a migraine and had to go in to work, although she had planned to be off. Penny was sick and the dog had thrown up on the carpet. Mom tried to entice Melody to stay home but Melody was determined to go to school. Because the whole family operation was running late, Mom had to drive Melody. A tired, emotionally- drained mom backed out of the drive. Soon, Melody was kicking and screaming ,trying to pull the keys out of the ignition, and grabbing Mom’s arm. And it was only when the car hit something with a soft thud that Mom became aware that Penny had run out of the house. Mom “screamed for a long, long time.”.
Obviously, Melody’s journey has taken its toll on the whole family. Here are parents who are trying so hard to support their daughter. It’s a reminder that we only see part of the student’s life. We don’t know the trials and the level of exhaustion a family experiences. Another note, Melody did not have access to Elvira, her communication device, during her time in the car. If only she had had an effective way to communicate . . . We can’t plan on when we need communication.
Melody feels responsible for the accident and she is extremely scared. She talks this out with Ms V, using Elvira, and Ms V is very supportive. She is worried that Penny could have brain damage or have to use a wheel chair. “Two broken kids,” Melody types. She communicates that she would rather be left at the airport than see her sister hurt this way. Dad calls with good news about Penny.
What strikes me is that with all the beautiful words that seem to flow through Melody’s head at times, her communication using Elvira is pretty “to the point.” Like she asks Ms V, “Is she dead?” Melody is not beating around the bush, and there is probably a lot of effort in typing novel utterances in this unplanned conversation. She NEEDS to be a writer in my opinion, because her thoughts are wonderful.
Melody goes to school on Monday and confronts her peers in Mr Dimming’s class. She breaks their silence by asking “WHY DID YOU LEAVE ME?” And to Claire, “YOU THREW UP! NOBODY LEFT YOU.” I was proud to her boldness in talking with them. They offer to give her their ugly, cheap little 9th place trophy, and her jerky hands makes it fall to the floor and break. And Melody giggles. “I DON”T WANT IT. YOU DESERVE IT,” she tells them. (Yeah, Melody!!)
I love Melody’s description of herself. It’s like somebody gave her a puzzle with no picture on the box. And she’s not even sure if she has all the pieces. Her sister is home from the hospital. Melody is at Ms V’s house working on a school project. And we get a little more information. She has just one thumb to communicate with!! And the ending of the story goes back and repeats the beautiful first chapter. She is surrounded by words, having been blanketed with words by her family. Deep within her are “mountains of phrases and sentences and connected ideas. Clever expressions. Jokes. Love songs.” How could I have taken my ability to speak and joke and sing for granted for so long?
And take 2 for chapters 30 and 31…
The next day after Melody had been left out of the quiz team trip, she was determined to go to school. She was angry and didn’t want anyone to think that she could be defeated that easily. The weather was horrific and everything was going wrong. Dad was injured, mom had a migraine, and Penny was sick. Melody’s mom and dad all but begged her to stay home, but she refused. After a series of unfortunate events including spilling orange juice, having to change her shirt, and missing the bus, Melody’s mom had managed to get her in the car in the pouring rain. Then, Melody realized she did not have her book bag. As her dad opened the door to give her mom the book bag, Penny slipped outside, unseen by all except Melody. Melody kicked, screamed, hit her mom, and did anything and everything to try and get her message across. She was going out of her mind and never wanted words more. Backing out of the driveway, they hear a soft thud, and realize the worst has happened and Penny had been hit by the car. I cannot imagine not being to communicate in an emergency. What are some ways that SLPs can provide our non-verbal students to communicate in ALL situations, even when they do not have their devices readily available?
Mrs. V looked after Melody as her parents went to the hospital with Penny. She brought Melody her device, but in that moment Melody had nothing more to say. Mrs. V said that Melody was not at fault and that she had tried to warn her mother. Melody responded that she had been mad at Penny and had made her mom take her to school. Melody was so worried that Penny was hurt or dead, and then she also wondered if her cognition would be impacted, like her classmate, Jill. She could not imagine that happening to Penny, and then her parents would have “two broken kids”. Mrs. V talked Melody through the accident and through the incident with the quiz team. Melody confided that she just wished she could be normal, and Mrs. V responded that normal sucks and the kids who left her on the quiz team trip were “normal” and why would she want to be like them? They received the news that Penny had made it through surgery and would live. What would be some good activities to do with students to help them realize that “normal” does not exist and everyone is unique in their way?
Megan Zeman shares:
One of my professional goals this year has been to expand my knowledge and implementation of AAC. I work in a middle school and a significant portion of my caseload uses AAC in some form and with a broad variety of ability. I find that I often get into a rut with using the same materials and targeting the same core words. It can be difficult to motivate my students to branch out and become engaged in new tasks. However, with the iPads the speech department received through a grant from the WHAS Crusade for Children, I’ve been able to find a variety of apps that are both highly engaging for my students (especially my students with a diagnosis of Autism who can be difficult to motivate to communicate) and that also allow me to target multiple core words.
1. Toca Boca and Peekaboo
Admittedly, these apps are a little juvenile for the middle school population. However, they’re still a big hit with some of my students in the MSD classrooms that I serve. Both Toca Boca and Peekaboo have multiple apps with different themes making them great to switch up according to seasons or holidays. These specific apps, Toca Boo and Peekaboo Barn were my favorite price, free! Other apps from these companies are fairly cost effective and range anywhere from $1.99 – $2.99 for individual apps. Both companies offer bundles of their apps for $4.99 and up.
Both of these apps are highly engaging for students and offer lots of repetition for multiple opportunities to use core words. In the picture below I was able to target core words using the following phrases: “What’s in the barn?”, “Can you get the animal out?”, “Open the doors.”, “Close the doors.”, “We’re all done with this animal.”, “Is the animal up in the loft or down in the barn.”, etc.
This app has been so handy to use with my students that are working on higher-level language skills such as inferencing, vocabulary, ‘wh’-questions, main idea, and detail. When you create an account through Epic! using your school e-mail address you have access to 25,000 ebooks, audiobooks, educational videos, and quizzes. I have been finding that my students are much more engaged in reading the material when they get to read and ‘turn pages’ on the iPad. If they come across a word that they’re struggling with they can hold the word down and a definition will pop up. I love using this app for defining words using the context from the stories. The students enjoy using the definition feature to check their answers in real time. The best part of the app is the ability to create quizzes for every story that you read or video that you watch. I’ve made quizzes targeting one skill such as vocabulary (see below) and other quizzes targeting multiple skills for my mixed groups. High interest and “weird” non-fiction articles such as Bigfoot by Jamie Kallio have been great in keeping my older boys that aren’t always thrilled with coming to speech engaged. I haven’t used fiction stories with this app as much but I’ve noticed that the selection seems to be decent. For example, there are a ton of books from the Goosebumps series by R. L. Stine featured in the app.
DO YOU WANT A COPY OF THIS BOOK??
Playing with Words 365 shares one cute activity to use with this book here. What other activities would you do with this book? If you would be willing to share some of your fun activities via a blog post, let me know (email me at Kinsey.firstname.lastname@example.org or comment below) and I will send one person this book to use and blog about!!
I know that (fingers crossed) the slime craze is winding down a little, but it could still be a great activity for therapy! You could practice following directions. Here is a recipe with picture supports that I created using Symbolstix. This is where I found the recipe, originally (I didn’t include measurements on the picture directions because I couldn’t make it fit!) Other fun ideas include:
Have you used slime in therapy? What fun activities have you used?
***Disclaimer- I would recommend having students wash their hands prior to this session :)***
Chapter 25 begins with the continuation of the championship round of the quiz competition. Melody’s team wins and gets to go to Washington DC. She is very excited. Her biggest thought at the time is that maybe by proving how smart she is, more kids at school will talk to her. It makes me think about the “special ed” students at my school. Do they think that they need to prove themselves to be recognized? While Melody can’t blend in due to her obvious physical differences, she often must feel like she’s invisible. How often in our own lives, do we turn the other way when someone looks different than the “norm” ? Do we write them off as not intelligent due to the way they look or talk?
In chapter 26, the team decides to go to a restaurant to celebrate. The first obstacle that Melody and her mom run into is that the restaurant is not wheelchair accessible (except for broken elevator). Then came the food. Melody did not know how the other students would react when they saw her being fed by her mom. Even though Melody had been fed her whole life, she was embarrassed now because it singled her out.
Chapter 27 opens with Melody’s mom showing the picture of her in the newspaper following the competition. Instead of being excited, Melody is not happy. The article does talk about her being an outstanding member of the team, but also mentions her cerebral palsy. Melody thinks that her teammates will hate her because the article focuses on her. Melody is probably wondering if she is specifically mentioned and photographed because of her disabilities and not her abilities. This is a stark reminder that we should focus on what a person can do and not what they can’t.
Melody finds out that she makes the final quiz team that gets to go to Washington! Claire does not make the team. Melody gets to go shopping and get some new outfits for the trip- no practical sweats! Her mom, Mrs. V, and Melody pack to make sure they are completely prepared for this exciting trip. Then the unthinkable happens. Melody’s flight is cancelled due to weather, but somehow the rest of the team was able to get out on an earlier flight. There are no other flights that will get her to Washington before the competition, and it is too far to drive and get there on time. Melody will miss the competition.
Melody returns home and lies in her bed. She can’t sleep. The events of the day are running through her head with endless questions about why and how this could have happened. Did they leave her on purpose? She is frustrated that she can’t even hit something or stomp her feet to show her frustration. Penny comes to snuggle with her, which calms Melody down a little. Mr. Dimming calls to apologize and promises to make it up to her. Melody’s mom does not accept the apology.
These were such heartbreaking chapters. To go from such joy and anticipation to such sadness and rejection, is so hard to process and accept. This child has worked so hard and overcame so many obstacles! Her family has sacrificed and supported her. They just can’t seem to catch a break. As I was reading I could feel the rejection, taking me back to my middle school and high school years, when I had felt left out and rejected. It is a pain that you never truly forget. But as a parent, I have learned that there is no pain greater than to see your child suffer and know that you can’t do anything to make it better. I keep thinking (hoping) that there must have been a good explanation for why no one called to tell Melody to come early. Why was she not invited out to breakfast with the rest of the team? It is so hard for me to imagine that a teacher would not make every effort to make sure she was included, but so far this particular teacher seems to be struggling with the idea of truly accepting Melody into the group… and if he can’t show acceptance, then how can he expect the students to accept Melody as a part of the team?
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